Damian Hinds MP backs bereaved family’s support of The Epilepsy Deaths Register

The launch of an epilepsy awareness initiative by an Alton family could help prevent Sudden Unexpected Death in Epilepsy (SUDEP).  Roger and Sandie Scrivens, whose daughter Becky died from SUDEP in 2004 aged just 11, were joined in Westminster by local MP Damian Hinds at the launch of The Epilepsy Deaths Register by SUDEP Action.

SUDEP claims hundreds of lives a year. Roger and Sandie want to raise awareness so families do not have to experience what they went through.  In an interview with Breeze FM Hampshire, Roger, a Trustee of SUDEP Action said: “if she had been diagnosed and been on medication there is a fair chance she wouldn’t have had the seizure that she obviously had that night, therefore she wouldn’t have died. Hindsight is a wonderful thing; but we can’t change what has happened in the past

source: Breeze FM Hampshire