SUDEP Action

Making every epilepsy death count
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Charity news update from SUDEP Action CEO - May 2020

18th May 2020
donation pot


On Saturday16 May, we remembered those who have died from an epilepsy related death, on what would have been our Memorial Service in London. Today (18 May), begins National Epilepsy Week, as we enter week 9 of the COVID -19 lockdown, SUDEP Action is carrying out new and important work throughout the COVID-19 health crisis and is working on behalf of all those bereaved by or living with epilepsy, to save lives now. It is only because of the legacy and ongoing support of our precious community that we can do this.
So, in National Epilepsy Week we highlight that this is about #MoreThanSeizures.
 
We are deeply worried that there will be more SUDEP deaths in the young (20-40s) this year than the number of deaths due to COVID-19. We have alerted a parliamentary inquiry already with a plea for a return of as many doctors and nurses as possible to the epilepsy front-line. Thanks to all our supporters, SUDEP Action’s Safety Tools, the SUDEP & Seizure Safety Checklist and EpSMon App, are there for families now to empower them to ask for help when many GP referrals have stopped, and epilepsy services are dramatically changed.

SUDEP Action is carrying out new and important work throughout the COVID-19 health crisis and is working on behalf of all those bereaved by or living with epilepsy, to save lives now. Those who support SUDEP Action with regular gifts are an important part of making this happen.
This National Epilepsy Week please help make a difference that will last and continue throughout the year.
 

"As someone who is fortunate to be in employment, it feels good to help in some small way during such a challenging time.  If you are in a position to support SUDEP Action and their amazing work during this very challenging time, I would encourage you to do that, it doesn't have to be a lot, even a small regular amount really makes a difference."

Kirstin, SUDEP Action regular gift supporter


Would you like to become one of our vital supporters?
By making a Regular Gift to SUDEP Action each month, quarter or year you help SUDEP Action continue to grow new projects that can help save lives.
Hearing the voices of our community at this time is more important than ever. Which is why this week, we have launched three new research projects; for people with epilepsy, clinicians, and one for the bereaved – to help us understand the impact of COVID-19 on your lives, so we can advocate for what you need now.

We will be sharing our surveys on our social media pages and in our upcoming e-news, so please add your voice to ours.

Take Care. Stay Safe.

Jane Hanna
SUDEP Action
 
Support line: 01235 772852
Email: [email protected]