SUDEP Action

Making every epilepsy death count
Call us now on 01235 772850

Avoiding premature death in epilepsy editorial – SUDEP Action comments

An editorial in the British Medical Journal has argued that deaths from epilepsy could be reduced as they have been for some cancers using screening for risk at general practice. 

SUDEP Action welcomes this editorial. In 2002 an editorial in the Lancet called for interventions using current knowledge and available therapeutic options as a strategy to cut epilepsy deaths. It followed the National Sentinel Clinical Audit of Epilepsy-Related Death report in 2002 which found that 42% of epilepsy deaths were potentially avoidable. There have been national guidelines and standards for epilepsy since then but investment in a community-based intervention is urgently needed.

SUDEP Action is the voice of over a thousand bereaved families across the UK and has worked to prevent deaths since founding in 1996. The charity funded the 2010 pilot study and the English study in 2013 that are highlighted in this editorial. In the last ten years there have been recommendations from national investigations into epilepsy-related maternal and child deaths and Fatal Accident Inquiries into individual deaths. All of these highlight the need for better risk management in epilepsy.

In the USA, the government has recently invested $5.9 million into researching Sudden Unexpected Death in Epilepsy. The UK is uniquely placed because of our national health service to develop a relatively simple intervention to cut epilepsy death rates. Many of the people who are at risk of dying will also share a risk profile for patients attending Accident and Emergency departments. This editorial brings to attention a huge opportunity to develop an intervention to improve management of epilepsy in the community and make life safer for people with epilepsy. Saving lives will also mean we begin to reduce the traumatic impact of these deaths on families and on society.

See full report here: BMJ Avoiding Epilepsy Deaths