SUDEP Action

Making every epilepsy death count

Book your place at our National Conference - 11th November

We're excited to be holding our National Conference in Leamington Spa on Saturday November 11. Come along and find out more about us, our work and the projects we're working on.

Inspiring effort from Brett & his family

The family of Brett Saunders have come to his aid to ensure his challenge of getting from John O'Groats to Land's End stays on track - despite injury.

We invite you to share your story

Your experience has the power to make an impact and help SUDEP Action to break down barriers for change. Contact us to learn more.

SUDEP Action Day is coming - Wednesday October 18th

This year. SUDEP Action Day is on Wednesday 18th October and the theme of the day is My Safety Matters - #mysafetymatters

Join us for My Way to 5K this autumn

My Way to 5K is back for its fourth year. Find out how to get involved, taking on the challenge of completing 5k to help raise funds and awareness of our work

I want information

I want help

I want to get involved

I want to get involved

I want to report a death

Welcome to SUDEP Action

There are at least three epilepsy-related deaths a day in the UK.

SUDEP Action is dedicated to raising awareness of epilepsy risks and tackling epilepsy deaths including Sudden Unexpected Death in Epilepsy. We are the only UK charity specialised in supporting and involving people bereaved by epilepsy.

Our services include bereavement support, counselling, help with understanding the inquest process and in collaboration with UK research teams, the involvement of bereaved families and professionals in research through the Epilepsy Deaths Register. If you have been affected by an epilepsy death, please contact our support team on 01235 772852.

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