SUDEP Action

Making every epilepsy death count
Call us now on 01235 772850

Review finds death of Clive Treacey 'potentially avoidable'

Elaine Clarke says her brother was ‘failed in life and failed in death’ as a national review has found that his death was ‘potentially avoidable’.

seek the truth

What is SUDEP?

Sudden Unexpected Death in Epilepsy (SUDEP) is when a person with epilepsy dies suddenly and prematurely and no reason for death is found.

My Story

We invite you to share your story

Your experience has the power to make an impact and help SUDEP Action to break down barriers for change. Contact us to learn more.

Forever remembered, forever missed

An online dedications wall to share your memories of your loved one for this year's Online Epilepsy Memorial Day on Wednesday 4th May 2022.

EDR

Epilepsy Deaths Register

The Epilepsy Deaths Register is a safe and secure single point for reporting all epilepsy-related deaths.We urgently require your help to gather vital information on deaths in people with, or suspected to have had, epilepsy.

26 words for Purple Day

For Purple Hearts for Purple Day 2022 – on March 26 - we asked you to give us 26 words for the 26th and tell us what SUDEP Action means to you.

1
2
3
4
5
6
7

Welcome to SUDEP Action

Welcome to SUDEP Action

There are at least three epilepsy-related deaths a day in the UK. 

SUDEP Action is dedicated to raising awareness of epilepsy risks and tackling epilepsy deaths including Sudden Unexpected Death in Epilepsy. We are the only UK charity specialised in supporting and involving people bereaved by epilepsy. 

Our services include bereavement support, counselling, help with understanding the inquest process and in collaboration with UK research teams, the involvement of bereaved families and professionals in research through the Epilepsy Deaths Register. If you have been affected by an epilepsy death, please contact our support team on 01235 772852.

SUDEP and Seizure Safety Checklist