SUDEP Action

Making every epilepsy death count
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Support from Organisations

Messages of support for SUDEP Awareness Day

USA

Thanks for sharing this. We'll be glad to spread the word of SUDEP Awareness Day with our audience in the U.S”.

Tom Stanton, Executive Director, Danny Did Foundation / www.dannydid.org


Congratulations on a great initiative.  We would love to talk about how we can collaborate on this for next year”.  

Cyndi Wright  |  Director, SUDEP Institute
DEP Institute  |  Epilepsy Foundation

New Zealand

Congratulations on the launch of the first and significant SUDEP Awareness Day, we wish you all the success needed and give you our assurance that New Zealand will be fully supportive of this campaign in October 2015”.

Frank Gouveia

Chief Executive - The National Epilepsy Association of New Zealand
Vice Chair – International Bureau for Epilepsy - Western Pacific Regional Committee

Ireland

“All of us at Epilepsy Ireland offer our full support for SUDEP Awareness Day which SUDEP Action are  launching today, Thursday, 23rd October 2014. This is a wonderful way to raise awareness of SUDEP and so prevent epilepsy deaths. I am sure too that all families who have lost a loved one to SUDEP or other epilepsy death will welcome this day as an acknowledgement of their untimely bereavement”

Mike Glynn, CEO Epilepsy Ireland

Canada

We are extremely pleased that SUDEP Action has launched a SUDEP Awareness Day.  It is important that people with epilepsy are well informed of all the risks associated with their condition, particularly SUDEP.  Although the cause of SUDEP remains unknown, there are ways that people can reduce their risk.  Discussion with healthcare providers is a much encouraged, important first step." 

Tamsin Jeffs, Founder, SUDEP Aware, Canada


"Congratulations on your day! Through my role with the Canadian League Against Epilepsy we sent an eblast to our members. All the best!"

Dr Elizabeth Donner, Paediatric neurologist, Canada


India

"We in Delhi, India, run a self help group, Ekatwam, which says together for epilepsy.
We support all that you are doing for the cause of SUDEP and would wish to join you in your endevaour to spread the information about the same, in our own little way.
We are organizing EpiCon 2014 International Conference on Epilepsy: Opportunities and Challenges (www.epicon2014.com) from 30.10.2014 to 01.11.2014, at my college, wherein Rosemary Panelli. International Officer, SUDEP Action  will share her information on SUDEP."

For the cause, Komal Kamra, University of Delhi