SUDEP Action

Making every epilepsy death count
Call us now on 01235 772850

National Epilepsy Week

National Epilepsy Week 2018

 

Monday 14 - Sunday 20 May 2018

SUDEP Action is supporting this National Epilepsy Week by giving a platform to the bereaved community to share their experiences. We would like to hear from YOU, about your journey and how you have connected with the charity during the last 21 years.

We are aiming to gather 1000 voices to help support the Prevent21 campaign.

There are already over 500 voices on The Epilepsy Deaths Register, but we need more.

Here's how you can get involved:

 

#1000voices survey
Through this survey, we would like to hear more about your connection with SUDEP Action and how this connection has helped. Tell us about your journey and the challenges you have faced.
Every voice collected, stands with us  - helping to make sure every epilepsy death counts and that future lives can be saved.
(Survey will be released soon)


Share your story
My Story - is an important and powerful way for you to join our campaign. We are very experienced in supporting those who wish to share their stories and who find it helpful to know that they are part of the collective ‘voice. Personal stories help to bond and encourage those that are bereaved. It’s also a wonderful way to celebrate the life of a loved one.
Stories can be shared on our website, social media, newsletters and on a more global scale, via SUDEP Global Conversation.
Contact shelly.johnson@sudep.org for more details on how you could be involved.


Epilepsy Deaths Register
The Epilepsy Deaths Register is a single point for reporting all epilepsy-related deaths.
We urgently require your help to gather vital information.
A death can be reported more than once and can be reported by anyone as family, friends, 
neighbours, and colleagues may have different information.  
If you have yet to add information to the register, you can do so via the link or you can call 0330 088 1220 for support.

 

We do understand that writing about your loved one and your experiences, can bring up emotions and memories.
If at any point you feel you would like to contact the support team, please email: support@sudep.org or give us a call on 01235 772852.