SUDEP Action

Making every epilepsy death count
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Kt’s Fund

Kt’s fund  is a trust set up by the family and friends of 20-year-old Katie Hallett.  Katie was a children’s nursing student who died from Sudden Unexpected Death in Epilepsy (SUDEP) in January 2006.

Kt’s Fund has so far raised £48,000 for SUDEP Action projects.  The charity has  hosted balls, quiz nights, bingo, ladies’ nights, jumble sales and sold homemade marmalade to raise funds.

“We’ve received a lot of support from SUDEP Action, and have done a lot of fund raising for the charity,” said Mrs Liz Hollingdale, a florist who lives with her husband Bob in Liskeard.

The initial aim was to fund an epilepsy nurse based in Cornwall, but the local NHS decided not to back the plan.  Following a meeting with SUDEP Action chair of trustees Professor Stephen Brown and director Jane Hanna, Kt’s Fund decided to back a series of projects to help raise awareness and influence improvements in epilepsy services in Cornwall. 

 “Katie would’ve loved what we’re doing.  She was a very caring girl, always putting others before herself, so this work is a fitting tribute to her.”  Katie only received her appointment to see a nurse two weeks after she died and following a two-year wait.