SUDEP Action

Making every epilepsy death count
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Epilepsy First Aid

You may find it helpful to carry identification that gives information about your epilepsy, how it affects you and what someone needs to do if you have a seizure. It should also include details of the medication you are taking and any specific allergies.

Make sure that family, friends and colleagues know what to do in the event of a seizure.  It is helpful to ask your doctor to include safety information in your epilepsy care plan and ask your family and friends to follow it.

Some mobile phones have an ‘Emergency ID’ section where you can store details about your epilepsy and contact details to be used in an emergency (& can be accessed even if you phone is password protected). Not everyone will know about these schemes, so it is recommended to have other methods also in place to help keep your safe. 

If you do not have a plan, the following is a useful guide:

Keep calm. Let the seizure run its course and do not try to do anything to stop it.   If possible, put something soft under the person’s head and move away objects to prevent injury. 

After the seizure, lay the person on their side in the recovery position.  Stay until they have recovered.  Once their breathing and colour is normal it is good to let them sleep until fully recovered. 

Call an ambulance if one of the following circumstances applies: 

  • The person is injured.
  • The seizure does not stop after a few minutes.
  • A seizure follows closely after another. 
  • The person has trouble breathing.