SUDEP Action

Making every epilepsy death count
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Charity conferences


Information and dates for the 2018 Conference will be released very soon. 


Can I register early interest in attending the National Conference 2018?

Yes. To register your interest for the National Conference 2018, email us on and we will notify you when booking opens next year.


Weekend National Conference 2017

SUDEP Action holds a National Conference each year, an event which is open to all our bereaved families.  For 2017, the programme was shaped to not only include sessions with leading experts, but to also allow for valuable time and space for chatting and sharing experiences. If you have not been before, you will hear all about the cause that we share and be with people who all understand. There is no need for explanation and no pressure to say or do. There will be time for questions and time with the SUDEP Action team. 

We also had plenty of exciting charity news to share, in particular about our projects and the important 2017 appeal.

Where and when?

Friday 9 June (pm) to Sunday 11 June 2017 (am)
Woodland Grange, Leamington Spa


So, what happened at this year's Conference?

Lightning presentations and Q&A sessions involving leading experts:

  • Professor Esther Rodriguez-VillegasProfessor in Electronics (Imperial College London) 
  • Dr. Craig Newman, Clinical Psychologist and NIA Fellow (Plymouth University)
  • Professor Henry Smithson, Professor of General Practice (University College Cork)
  • Professor Mike Kerr, Professor of Learning Disability and Honourary Neuropsychiatrist (Cardiff University)

PLUS, an update on charity achievements and where we’re headed next, by Jane Hanna, SUDEP Action Chief Executive.

For more details, and an account of how the event went, take a look at the article in our news and blogs page.


“I wasn’t sure what to expect, but the informal atmosphere was very reassuring. Everyone was so friendly and welcoming and we met some lovely people. It was also very interesting to hear all about the work that SUDEP Action is doing and what the charity’s aims are. We will look forward to coming to next year’s conference.”

A bereaved mother, following the Conference 2016