SUDEP Action

Making every epilepsy death count
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Independent report highlights urgent need for avoidable deaths to be reviewed, tackled and prevented by the NHS

SUDEP Action are both saddened and pleased to hear the findings of the draft Mazars report into avoidable deaths within the NHS that has been released into the media today and our thoughts are with all those who have been affected. As an Oxfordshire Charity who for the last 20 years has been dedicated to reducing the number of potentially avoidable epilepsy deaths in the UK each year through information, education and epilepsy safety tools such as the SUDEP and Seizure Safety Checklist and EpSMon; we hope this report when officially published in the coming weeks will continue to draw attention to the urgent need for improvements to be made surrounding avoidable deaths within the NHS.

We work with health professionals, bereaved families, people with epilepsy and supporters across the UK and internationally to highlight the 1200 epilepsy deaths across the UK each year (many of which are potentially avoidable), and how by supporting best practice within the NHS and Care-sectors we are able to make a difference to this number. We also provide researchers with information via the Epilepsy Deaths Register which helps to highlight the experiences of families bereaved by epilepsy and gaps in care. 

In the New Year we will continue with these plans on behalf of our supporters who have lost a loved one to epilepsy, with new projects to support those involved in the care of people with epilepsy and we hope you will continue to support us on this mission however you can.

If you would like more information or to be kept up to date with our current and future projects, please visit www.sudep.org or contact samantha.ashby@sudep.org